2019 Metro KC

Sara's Faith Walkers

Thank you for visiting our team page and helping us to reach our fundraising goal!

Our team is joining the fight against brain cancer by participating in Head for the Cure Metro KC on August 25, 2019. Head for the Cure is dedicated to raising awareness, funding the fight and improving the outlook for brain cancer patients.

Head for the Cure works to inspire hope for the community of brain cancer patients, their families, friends, caregivers and other supporters, while celebrating their courage, spirit and energy. Every Head for the Cure event marks a day of celebration where those diagnosed with brain cancer are honored and celebrated by their friends and families, those who have lost their battles are remembered, and we are all inspired to carry on the fight.

Funds raised by Head for the Cure support the Brain Tumor Trials Collaborative, a network of medical centers with the expertise and the desire to participate in state-of-the-art clinical trials investigating new treatments for malignant brain tumors.

Each year, over 200,000 people in the United States are diagnosed with a primary or metastatic brain tumor. More than 120 types of brain tumors exist, making effective treatment complicated. Cutting edge research is needed as we continue to make strides in this fight.

Please consider making a donation today to help us reach our goal and to help Head for the Cure defeat brain cancer, step by step!

 

Here is Sara's Story:

Sara Tuttle-Inman was a 26 year old newlywed when she had a massive seizure at work on June 11, 2012.  She was rushed to the hospital where, after suffering a second seizure, scans revealed a large mass on the front right section of her brain. The tumor, which was almost one and a half times the size of a golf ball, was surgically removed and diagnosed as a malignant glioblastoma.  Although all of her doctors believed the tumor had been completely removed, the odds of some cancerous cells remaining in the surrounding area was likely, so they decided to begin an aggressive course of daily chemotherapy and radiation treatments on July 26, 2012.

In early September of that year, Sara’s treatments were put on hold when she was readmitted to the hospital because her white blood cell and platelet levels had fallen dangerously low.  While hospitalized, Sara received two sets of blood transfusions.  These transfusions were instrumental in helping her blood counts improve and, ultimately, allowed her to resume and complete her radiation treatments.  In early November 2012, Sara received the happy news that her latest MRI scan was clean.

Unfortunately, her first scan of the next year, on January 3, 2013, showed signs of new tumor growth.  Over the next two years, Sara experienced more surgeries, chemotherapy treatments, and blood transfusions.  In early 2015, scans revealed another new tumor.  When the new tumor stopped responding to chemotherapy treatments, Sara decided to join a clinical trial.  Sara made numerous trips to Houston between May and October of 2015 to receive this new treatment. 

In October 2015, Sara’s symptoms quickly worsened.  Scans indicated that the new treatment was starting to work because the tumor had stopped growing and had become stable. There didn’t seem to be much of an explanation as to why her condition was worsening so quickly.  To help control the symptoms, Sara was put on a steroid, which prevented her from continuing with the trial.  (It was much too difficult for her to travel in her current condition anyway.)

Sara passed away on her 30th birthday, June 9, 2016.  Two days before the 4 year anniversary of Sara discovering she had a brain tumor.  She spent every day of her four year battle trying to beat the odds.  Sara did just that.  Each time she bounced back from a complication, she surprised everyone, including her doctors.  She was a true fighter.  She never gave up.  Even in her final days, she had not given up.  She was still praying for a cure.  She was willing to do or try anything to say on this earth a little longer.

Despite the struggles Sara experienced, her amazingly positive attitude never wavered.  She gave thanks to God every day—even on the bad days.  When times got tough, she invariably turned to her favorite verse from Jeremiah 29:11, “For I know the plans I have for you declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future."

During Sara's four year battle, anytime someone would ask Sara how she was doing, she always responded, “Today is a good day.” It didn’t matter how she was feeling on that particular day, she would respond, “Today is a good day.” During her final days, as Sara struggled to find the strength to stay awake and to form words, when visitors arrived and asked her how she was doing, she responded, “Today is a good day.” From this day forward, this will be our family mantra. Today IS a good day.

 

Please help us, and the Head for the Cure Foundation, raise awareness and funding for Brain Cancer Research.  We have no doubt that the advances in medicine over the last few years helped to extend Sara's life.  Her chemotherapy medicine that she took throughout much of her treatment had only been approved for use with brain cancer patients for a short time when Sara started taking it.  She was thankful for the opportunity to participate in the clinical trial in 2015 and to be a part of such ground-breaking research! 

We are currently focusing our efforts on raising money for research so that one day soon there will be a cure, and no other family will have to go through what Sara and our family has endured.  We are blessed with an amazing support system.  Our family, friends, schools, communities, churches, and online followers have been a huge part of that support.  We will never be able to thank you all enough. 

NOW, IT'S TIME TO FIND A CURE FOR THIS HORRIBLE DISEASE!!!

 

 

You can help us raise money in several ways.  We hope you can register to join our team "Sara's Faith Walkers".  Our goal is to have 100 team members this year.  If you are not in the KC area, there is an option where you can register as a "Virtual Team Member".  You can also make a donation to our team in Sara's honor.  Please help us reach our fundraising goal of $2000.  To mail in a donation: Make all checks payable to: Head for the Cure and please put “Sara’s Faith Walkers” in the Memo field.  Mail to: 1607 Oak Street, Kansas City, MO 64108.  Your tax-deductible gift makes a true difference in the fight against brain cancer! Whatever you can give will help - it all adds up!  

Thank you for continuing to keep Sara and our family in your thoughts and prayers.  Together, we will find a cure!!!

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